Now that lockdown measures are easing, lots of people, including those who are shielding for health reasons, are keen to ensure that social distancing guidelines continue to be followed. Some … Continue reading Please give me space
Category: Information and Support
Want to meet up?
You’re warmly invited to join us for one or more of our upcoming forums in the run up to Open Day 2020. Because we know that one of the ‘best bits’ of … Continue reading Want to meet up?
Discrimination against B4 athletes within International Blind Sport
Charities supporting people living with vision impairments, including the Nystagmus Network and the Albinism Fellowship UK, have signed an open letter from B4 International Blind Sports, outlining concerns about discrimination … Continue reading Discrimination against B4 athletes within International Blind Sport
Renewing a driving licence
Here is the latest update from the DVLA regarding driving licence services. As a result of the impact of the COVID-19 pandemic, Ministers at the Department for Transport have agreed to … Continue reading Renewing a driving licence
BBC charity appeal raises £8,000
Following transmission of the Nystagmus Network’s Radio 4 appeal, presented by Richard Osman, the charity has received universally positive feedback on the clarity of the broadcast’s message. One listener, in … Continue reading BBC charity appeal raises £8,000
Research participation opportunity
People with nystagmus are being invited to contribute to medical research by sharing their experiences of accessing a patient information pack, designed to support people living with the little known … Continue reading Research participation opportunity
Homeschooling and nystagmus
A Guest Post by author and nystagmus Mum, Nadine Neckles So the world has turned on its head and what we once considered normal and safe has morphed into anxiety … Continue reading Homeschooling and nystagmus
Welcome boost for new mums and dads of young children with albinism
Guest post from Roselle Potts, Albinism Fellowship For more information, please contact Roselle Potts, email: chair@albinism.org.uk While the birth of a new baby is an occasion to celebrate, parents of … Continue reading Welcome boost for new mums and dads of young children with albinism
Nystagmus is … a guide for adults
A fabulous new publication, Nystagmus is … a guide for adults, is now available FREE from our online shop. The booklet is inspired by the wonderful Roger (pictured), who first contacted us … Continue reading Nystagmus is … a guide for adults
The Nystagmus Network receives £8,000 from the National Lottery to increase our support services
The Nystagmus Network is delighted to have been awarded just over £8,000 in National Lottery funding to underpin its work supporting adults with nystagmus. The charity will use the funding … Continue reading The Nystagmus Network receives £8,000 from the National Lottery to increase our support services