Nystagmus Awareness Day – Page 7 – Nystagmus Network

Harry reads his Raindrops story

Harry’s story for Raindrops

This is Harry. Harry is 9 years old. He’s just written his story for the Raindrops story writing competition. It’s about Raindrops and what they make him think of. Well … Continue reading Harry’s story for Raindrops

3 children reading a book together. They are all wearing Nystagmus Network T-shirts.

Looking forward to 20 June

We’re launching something BIG for Nystagmus Awareness Day 2021 But first, a question. Who’s your favourite children’s author? David Walliams? Eva Ibbotson? Onjali Rauf? Eoin Colfer? Malorie Blackman? Adam Blade? … Continue reading Looking forward to 20 June

A thank you card from the Nystagmus Network showing an image of 2 boys taking part in a team building exercise.

BBC charity appeal raises £8,000

Following transmission of the Nystagmus Network’s Radio 4 appeal, presented by Richard Osman, the charity has received universally positive feedback on the clarity of the broadcast’s message. One listener, in … Continue reading BBC charity appeal raises £8,000

A view of a street scene at sunset.

Wilson’s winning window

We are delighted to announce that 16 year old Wilson is the winner of our Nystagmus Awareness Day photography competition: The View from my Window. Wilson is very pleased to … Continue reading Wilson’s winning window

Richard Osman

Richard Osman to voice Radio 4 appeal

The Nystagmus Network is delighted to announce that it has been granted a BBC Radio 4 charity appeal. The appeal will be presented by well known TV presenter, broadcaster and … Continue reading Richard Osman to voice Radio 4 appeal

Nadine smiles for the camera

Homeschooling and nystagmus

A Guest Post by author and nystagmus Mum, Nadine Neckles So the world has turned on its head and what we once considered normal and safe has morphed into anxiety … Continue reading Homeschooling and nystagmus

Neil sits on a bench.

Nystagmus in lockdown

In this Guest Post, Neil writes about his experiences of lockdown as a visually impaired person. I’m registered partially sighted and diagnosed with nystagmus and ocular albinism from birth. Both … Continue reading Nystagmus in lockdown

Nystagmus Awareness Day 20 June 20

Nystagmus Awareness Day – 20 June 2020 It’s national and international Nystagmus Awareness Day on Saturday 20 June 2020. We may all be staying at home this year, but we … Continue reading Nystagmus Awareness Day 20 June 20

Roger stands in his garden.

Nystagmus is … a guide for adults

A fabulous new publication, Nystagmus is … a guide for adults, is now available FREE from our online shop. The booklet is inspired by the wonderful Roger (pictured), who first contacted us … Continue reading Nystagmus is … a guide for adults

A YouGov nystagmus awareness survey

The Nystagmus Network commissioned a YouGov survey in May 2020, ahead of Nystagmus Awareness Day on 20 June, to see how aware the UK population is of nystagmus. The survey … Continue reading A YouGov nystagmus awareness survey