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Your chance to influence the direction of UK nystagmus research NUKE is the Nystagmus UK Eye research group. Members are currently researchers, clinicians, academics and patient support groups, including, of … Continue reading Next steps for NUKE
A Nystagmus Champion is someone who goes above and beyond to raise awareness of the condition, to raise funds or generally make life better for people living with nystagmus. The … Continue reading Nystagmus Champions of 2022
After a three-year wait following the pandemic, an enormous amount of planning and anticipation, it is with huge disappointment that trustees and staff have decided to cancel this year’s in … Continue reading Open Day to be virtual after all
Having nystagmus hasn’t stopped Leicester’s Khalil Musani from forging a career in optics and helping others look after their eyes When Khalil secured a Saturday job at a Leicester opticians … Continue reading Leicester optician puts nystagmus in Focus
What is the psychological impact on parents immediately following a child’s diagnosis of congenital sensory impairment? Rebecca Greenhalgh, Trainee Clinical Psychologist at Coventry University is leading a new research project, … Continue reading New research explores parental experience of their child’s diagnosis
Following the announcement of a further national rail strike on Saturday 1 October, charity trustees have been obliged to take both Open Day and the AGM online. Notice is hereby … Continue reading Notice of the Nystagmus Network AGM
Nystagmus Network trustees donated £17,000 to the paediatric fund of the University of Southampton’s Gift of Sight appeal last December thanks to the generosity of our fundraisers and supporters. Someone … Continue reading Nystagmus Network invests £17,000 in research
This August the Nystagmus Network was finally able to meet with and celebrate the incredible achievements of a true nystagmus superhero, Mike Larcombe. From December 2019 and for a total … Continue reading Meet me in Southampton
Booking is now open for the Nystagmus Network Open Day on Saturday 1 October in Sheffield. In the historic grandeur of the Cutlers’ Hall, hear the latest thinking on nystagmus … Continue reading Open Day 2022 – secure your ticket today!
Researchers are investigating the impact of glare on young children with albinism and nystagmus to help ease important day-to-day tasks like reading. Jointly funded by Nystagmus Network and Fight for … Continue reading The impact of glare on reading
