Sara on the NHS front line

Sara works hard part time as Information Support Officer with the Nystagmus Network, but did you know she also works on the NHS front line? She’s even working today on her son’s birthday.

Her role is with a busy doctors’ practice. Sara says:

“I manage a team of 10 receptionists and support all the clinicians including GPs, nurses and pharmacists. My main responsibility during Covid-19 is first and foremost keeping our patients and staff safe.

‘We’ve had several members of staff needing to self isolate, so it’s a case of putting plans into place for the worst case scenario. To comply with social distancing we’ve had to rearrange the patient waiting area completely. Then there’s the difficulty of keeping staff 2 metres apart throughout the surgery.

‘Fortunately, our patients can message us by email, so saving them the need to come into the surgery. They can describe their symptoms or send us photos of something like a rash they may need help with. We can email sick notes and other documents. Our GPs are also conducting consultations by video call to protect patients and surgery staff.

‘Everyone at the surgery, including my reception team, is working very hard during a time when we’re under incredible pressure. We’re having to amend and update policies and procedures daily as the situation continues to change, but we’re an amazing team and I’m fortunate to be supported by a fantastic NHS work family!”

Well done, Sara. We know how much your GPs value you, especially as you’re their in-house nystagmus ‘expert’, too!

HAPPY BIRTHDAY, CHARLIE! Mum will be home in time for tea!

Nystagmus Aware logo

Does nystagmus or ocular albinism affect my immunity?

Lots of you are asking us this question and some of you have received notification letters from the government.

We asked for expert clinical advice and received the following statement:

“IN (infantile nystagmus) or OA (ocular albinism) in isolation are not associated with compromised immunity.

“There are some syndromic forms of albinism that are associated with immunocompromise and these patients would already be aware of this and/or have been notified by the UK government that they are in the vulnerable group.”

Whether or not you have nystagmus, please remember to follow scrupulous hygiene practices, including thorough hand washing, whenever inserting, removing or cleaning your contact lenses as we understand that the coronavirus can enter the body through the eyes.

If you wear glasses or sunglasses, please wash these regularly using non abrasive soap – we find washing up liquid does the trick.

If you are registered sight impaired (SI) or severely sight impaired (SSI) you can ask to use priority shopping times and online supermarket delivery slots.

Keep asking us you questions. We will find the answers for you.

Say safe and well