Nystagmus Dad, Robin, writes: My 9 year old son, James, has OC Albinism and Nystagmus, but he and I started learning the guitar together about 3 years ago ( he obviously struggled to see the music and the strings on the guitar, but, when blown up, he can read the score and any annotation written … Continue reading How amazing is James?
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How amazing is Jac?
Jac is running a 2.5k fun run this month to raise awareness of nystagmus and fundraise for the Nystagmus Network. His Mum and Dad didn’t find out Jac had nystagmus till he was 3 years old and always tell him he can do anything he wants. We’re sure Jac will achieve great things! You can … Continue reading How amazing is Jac?
How amazing is Ella?
Ella’s Mum tells us about her 16 year old daughter, Ella, who has nystagmus and optic nerve hypoplasia. She has also had to endure major surgery to straighten her spine, having discovered she was suffering from scoliosis. “Ella is a singer/songwriter and at the end of last year won Leeds City Council Breeze has Talent, … Continue reading How amazing is Ella?
How amazing is Vicki?
Here’s Vicki’s nystagmus success story … I have congenital nystagmus and ocular albinism and want to help to encourage other people to reach their potential. I graduated from Durham university with a degree in Maths and Physics. During the first couple of years of my degree, I refused the extra help I deserved due to … Continue reading How amazing is Vicki?
How amazing is Ben?
Ben’s Mum tells us: “I am incredibly proud of my son, Ben who is 10 and has nystagmus. He plays for the under 10s Winslow Tigers football team. Recently he scored a hat trick and received the Man of the Match Trophy. He has to work twice as hard as his friends, as he hasn’t … Continue reading How amazing is Ben?
How amazing is Rosine?
Hi there. I just wanted to share with you the amazing journey I’ve embarked on in Blind Tennis, a sport that has given me my freedom, my independence and my life, whilst living with Nystagmus, strabismus and astigmatism! A couple of weeks ago I was part of the team of 8 representing Great Britain in … Continue reading How amazing is Rosine?
How amazing is Charlie?
I’m Charlie, I’m 14 years old and live in Lincoln. I live with my parents, my brother and sister. I’m currently studying for my GCSEs. I would love to do Maths, Psychology and Government and Politics A levels. Eventually, I’d like to train as a Barrister in Criminal Law. My life growing up has always been a … Continue reading How amazing is Charlie?
How amazing is Matt?
Matt has nystagmus, but, as his Mum tells us, he is on the road to a stellar career. Matt is currently the director / choreographer for a production of Joseph in our local area later this year. There are 50 young people in the show and he works tirelessly for the group. He has been … Continue reading How amazing is Matt?
How amazing is Katrina?
Katrina thinks she’s just a regular student who happens to have nystagmus – we think she’s an amazing nystagmus ambassador! Here’s Katrina’s nystagmus story … I am 19 years old. I attended a mainstream school and was treated like everyone else. I felt no different. In my exams I had A3 papers and extra time, … Continue reading How amazing is Katrina?
How amazing is Rocco?
Rocco is 6 years old. He has Ocular Albinism and nystagmus, he also has other disabilities, but, for the first time in his life, his parents have got a report saying he was age appropriate at reading. They are totally thrilled because they never thought he’d read. Well done, Rocco!