Wobbly Wednesday


The first Wednesday in November is national and international nystagmus awareness day.

Wobbly Wednesday 1 November 2017

This year’s theme is the Nystagmus Big Swim. Download your stuff now!

We want everyone to feel they can take part. So whether you’re looking forward to splashing around in the paddling pool at home, about to paddle in the sea on your first ever seaside holiday, learning to swim your very first width at the local baths, building up your laps in the fast lane at the gym, hoping to swim with dolphins, going scuba diving on holiday or planning to swim the English channel – you can take part in the Nystagmus Big Swim.

All you have to do is tell everyone about it and ask them to sponsor you.

On social media

On Facebook and Twitter you can join in the worldwide conversation, using #nystagmusbigswim. Post your Nystagmus Big Swim ideas, events, photos, thoughts or questions and get the whole virtual community talking about nystagmus.

You can also sign up to our Thunderclap. Just click the link and sign up using your Facebook or Twitter account to post a one time message of support on the big day.

Steve McKay photography competition

Despite his nystagmus, Steve had a passion for photography. He also coined the term Wobbly Wednesday. In tribute to Steve we are running a photography competition for Nystagmus Awareness Day this year.

We want you to take some amazing pictures of ‘the built environment’. You can interpret that brief however you like. If you can incorporate a link to nystagmus then that would be terrific. A moody and atmospheric picture of your local eye hospital perhaps?

To enter, email your photograph to info@nystagmusnet.org by Wobbly Wednesday on 1 November. Don’t forget to give us your name, address, your age if you are under 18 and tell us, please, whether or not you have nystagmus.

We will share some of your pictures on Facebook. Professional photographer, Dave Brogan, has kindly agreed to judge the entries. The winner will be announced on 30 November and receive a suitable prize.

Making a donation

To join the fundraising already for Wobbly Wednesday 2017, go to our Wobbly Wednesday campaign page today.

Alternatively, you can set up your own Justgiving page for your Wobbly Wednesday event.

Need a sponsor form? Download yours today!

Other events for Wobbly Wednesday

If you’re not into swimming – no problem! There are loads of other fun activities, at the pool side or anywhere else, that you can join in with or organise. How about a seaside themed party, Pooh sticks on the river, a bad taste beach wear fashion show, an angling match, a nautical themed pub quiz or, one of our favourites, a good old-fashioned bake sale with fishy themed cakes? For more ideas try our Wobbly Wednesday Event A-Z.

Why take part in Wobbly Wednesday?

Every time you tell someone what you’re doing and why, that’s one more person who understands what nystagmus is.

Every pound you raise will help the Nystagmus Network support our research teams across the UK to investigate this hugely complex condition, to find better diagnosis, treatments and continue to work towards prevention and cure.

Save the date! 1st November 2017

So please join in the Nystagmus Big Swim and help us raise awareness and as much money as we can.

Get started now and by Wobbly Wednesday 2017 on Wednesday 1st November we’ll be able to celebrate the big difference we’ve all made together.

Thank you to everyone for supporting Wobbly Wednesday, Nystagmus Awareness Day.