Vikki and Tom – our first abseilers


Vikki and her husband, Tom, were the very first to sign up to abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. Vikki’s family have been members and supporters of the Nystagmus Network for many years. Parents, Peter and Lynne, even organised an entire Open Day one … Continue reading Vikki and Tom – our first abseilers

Open Day tickets on sale now!


Tickets for the Nystagmus Network Open Day 2018 go on general sale at midday today. With a packed line up of speakers and presenters, including Marsha De Cordova MP, Shadow Minister for Disabilities and David Katz, internationally acclaimed ‘blind’ photographer, alongside presentations from the UK’s top nystagmus research teams and workshops on education support, benefits, … Continue reading Open Day tickets on sale now!

Nystagmus research – a progress report


The Nystagmus Network is funding equipment and testing to underpin nystagmus research taking place at Cardiff University School of Optometry and Vision Sciences, in collaboration with the genetics research team at the University of Southampton. On behalf of the Cardiff team, Nikita Thomas reports: “Our study attempts to investigate how visual function in Idiopathic Nystagmus … Continue reading Nystagmus research – a progress report

Want to abseil at the Queen Elizabeth Olympic Park?


Could you take the plunge and abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park? It’s an exhilarating descent to the ground, with a breathtaking 20 mile vista across London, including iconic buildings such as the Gherkin, St Paul’s Cathedral, Canary Wharf and Wembley Stadium, … Continue reading Want to abseil at the Queen Elizabeth Olympic Park?

Sue attends APPG meeting on eye research


Sue attended a meeting yesterday at the House of Commons of the All Party Parliamentary Group for Eye Health and Visual Impairment. The subject of the meeting was eye research. Sue was the guest of Fight for Sight, whose Chief Executive, Michele Acton, gave a powerful account of the current sight research position and admirably … Continue reading Sue attends APPG meeting on eye research

Thursday is research news day on Facebook


Every Thursday on our Facebook page we publish the latest news on nystagmus research or publish details of new nystagmus trials that you can take part in. We are currently supporting these trials: The Southampton University Hospital team need to find people with albinism and nystagmus, aged over 60 so that Mr Jay Self and … Continue reading Thursday is research news day on Facebook

Soft contact lenses may improve vision in adults with CIN


A pilot randomised study, led by Maria Theodorou FRCOphth, PhD at Moorfields Eye Hospital, London, funded by the Nystagmus Network/Fight for Sight, Moorfields Eye Hospital Special Trustees and the National Institute for Health Research (NIHR), has shown that wearing soft contact lenses may help people with CIN see a little better. The purpose of the study … Continue reading Soft contact lenses may improve vision in adults with CIN

New research project on visual crowding in CIN


A new research project is being undertaken at Moorfields Eye Hospital and University College London. The aim of the study is to understand better the visual abilities of people with congenital nystagmus, with a particular focus on visual crowding, a phenomenon which occurs when an object that is visible in isolation becomes impossible to recognise … Continue reading New research project on visual crowding in CIN

Research participation opportunity – albinism in the over 60s


Albinism researchers in Southampton (Jay Self and Helena Lee) would love to hear from anyone with any form of albinism who is over the age of 60. If you or anyone you know fits the bill, please read on …     Jay and Helena are seeking to understand two questions which have baffled researchers … Continue reading Research participation opportunity – albinism in the over 60s

Nystagmus research update from Southampton


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Mr Jay Self BM, FRCOphth, PhD, Associate Professor at Southampton … Continue reading Nystagmus research update from Southampton