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Are you looking for a new opportunity to give your energy, time, skills and talent to support a small charity? The Nystagmus Network is looking for people who would like … Continue reading Trustee and volunteering opportunities
Matthew is a second year BA Geography student at Northumbria University, Newcastle. He also happens to have oculocutaneous albinism. He is passionate about increasing academic knowledge on the subject of … Continue reading Matthew’s research on albinism
A man from Cardiff is taking Uber to court over claims they refused to pick him up with his guide dog on more than 100 occasions. Cardiff-based entrepreneur, Dan Williams … Continue reading ‘Rip Off Britain’ air Dan’s story of Uber refusals
If you missed Richard Osman presenting the Nystagmus Network charity appeal on BBC Radio 4 at 07.54 this morning you can listen again now. Listen again here Make a donation … Continue reading Missed the appeal? Listen again!
We are delighted to announce that 16 year old Wilson is the winner of our Nystagmus Awareness Day photography competition: The View from my Window. Wilson is very pleased to … Continue reading Wilson’s winning window
Ifigeneia Manitsa is a Psychology researcher at Kingston University London and her research is about the social and academic inclusion of adolescents with and without visual impairments. She is currently conducting … Continue reading Calling parents of 12-14 year olds – research questionnaire
People with nystagmus are being invited to contribute to medical research by sharing their experiences of accessing a patient information pack, designed to support people living with the little known … Continue reading Research participation opportunity
The Nystagmus Network is delighted to announce that it has been granted a BBC Radio 4 charity appeal. The appeal will be presented by well known TV presenter, broadcaster and … Continue reading Richard Osman to voice Radio 4 appeal
A Guest Post by author and nystagmus Mum, Nadine Neckles So the world has turned on its head and what we once considered normal and safe has morphed into anxiety … Continue reading Homeschooling and nystagmus
In this Guest Post, Neil writes about his experiences of lockdown as a visually impaired person. I’m registered partially sighted and diagnosed with nystagmus and ocular albinism from birth. Both … Continue reading Nystagmus in lockdown
