Day: 15 October 2018

2 runners wearing Nystagmus Network show their medals after comleting the Royal Parks Half Marathon

Clare did it for nystagmus and for Jessica

Clare ran the Royal Parks Half Marathon on Sunday 14 October to raise money for the Nystagmus Network in honour of Jessica, who was born with the condition.

The Royal Parks Half is billed as one of the most picturesque runs in the country, but, sadly, the beautiful autumnal colours were a little washed out by the rain.

Undeterred, Clare has raised almost £900 in sponsorship for the charity and made the whole nystagmus community proud.

After her run she said: “At mile 5 I saw someone with Nystagmus who screamed out and made me so emotional I cried till mile 6!”

THANK YOU, CLARE!

You can still sponsor Clare here.

Walk Eye to Eye for nystagmus research

Supporters of the Nystagmus Network and anyone keen to raise money for nystagmus research at Moorfields Eye Hospital and University College, London can now sign up to walk Eye to Eye in March 2019.

The Eye to Eye walk takes a route (you can choose either 4 or 14 miles) from the London Eye on the South Bank of the Thames to the iconic eye sign outside Moorfields Eye Hospital.

Join Team Nystagmus Network for the walk to make sure that every penny you raise in sponsorship goes directly into ground-breaking nystagmus research at Moorfields and UCL.

We’ll be setting off at 11am on Sunday 10 March. Bring the family, bring the dog! Everyone welcome.

Please sign up today!

Nystagmus Patient Information Day

The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November.

Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support services available.

The structure of the day will involve:

  • An overview of nystagmus and current management
  • A patient journey
  • Interactive discussion focusing on the needs of the patient
  • Talks from Visual Impairment and Low Visual Aids teams

Sue, from the Nystagmus Network, will be at the event.

Lunch and coffee will be provided, and places (free of charge) will be allocated on a first come, first served basis.

Tickets close: midnight Friday 9 November

For enquires please contact Maria Theodorou at: [email protected].

This day is funded by Friends of Moorfields with support from Nystagmus Network.

We will not be discussing children services at this meeting. Some of the content and discussions had may not be suitable for children. We are unable to offer childcare facilities on the day.

To book your place, please click here.

The event is hosted by NIHR Biomedical Research Centre at Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology.