September 5, 2022 – Nystagmus Network

A row of people stand outside Specsavers wearing Nystagmus Network T-shirts.

Leicester optician puts nystagmus in Focus

Having nystagmus hasn’t stopped Leicester’s Khalil Musani from forging a career in optics and helping others look after their eyes

When Khalil secured a Saturday job at a Leicester opticians in 2017 it proved to be the catalyst to fulfilling his ambition to work in optometry.

Now, aged 21, and assistant manager at Specsavers Leicester, Khalil wants to raise awareness of nystagmus, the condition he has lived with for most of his life, alongside building a career in optics.

On Nystagmus Awareness Day 2022, Khalil and his entire staff team donned Nystagmus Network T-shirts and wristbands to raise awareness of nystagmus and support the work of the charity.

For his tremendous support, raising awareness of nystagmus and to honour his career success, the Nystagmus Network has nominated Khalil one of the ‘nystagmus champions’ of 2022. Join us to celebrate Khalil and all the nystagmus champions of 2022 at Open Day.

Khalil’s inspiring story has been told in local press articles in print and online.

Read a Leicester Times article online here

New research explores parental experience of their child’s diagnosis

What is the psychological impact on parents immediately following a child’s diagnosis of congenital sensory impairment?

Rebecca Greenhalgh, Trainee Clinical Psychologist at Coventry University is leading a new research project, funded by Coventry University, School of Psychological, Social and Behavioural Sciences, designed to gain a better understanding of parents’ experiences immediately following their child’s diagnosis with a sensory impairment. It’s hoped that this information will help medical staff, midwives, psychologists and social workers provide better support during the period of the diagnosis.

The research was granted ethical approval by Coventry University’s Research Ethics Committee.

Participants will be interviewed by the lead researcher and be asked a number of questions about their experiences of receiving their child’s diagnosis of congenital sensory impairment, including speaking about how they felt at the time, what their thoughts were and their immediate reactions.

The interview will last between 60 and 90 minutes and will take place either remotely via a secure online platform, or face to face, according to participants’ preferences.

If you would like to take part, please contact the lead researcher Rebecca Greenhalgh (see contact details below). You will receive participant information and be asked to complete a consent form before taking part.

Researcher contact details:
Lead Researcher
Rebecca Greenhalgh, Trainee Clinical Psychologist
Email: [email protected]