The Nystagmus Network is working hard to bring you closer together with other people living with nystagmus or with parents and carers of children and young people who have the … Continue reading Keeping you connected
Category: Living with nystagmus
Training eye care professionals
High street optical staff need to understand the complexities of nystagmus, how to test the sight and how to dispense any corrective glasses or contact lenses. Due to the cancellation … Continue reading Training eye care professionals
Please give me space
Now that lockdown measures are easing, lots of people, including those who are shielding for health reasons, are keen to ensure that social distancing guidelines continue to be followed. Some … Continue reading Please give me space
Want to meet up?
You’re warmly invited to join us for one or more of our upcoming forums in the run up to Open Day 2020. Because we know that one of the ‘best bits’ of … Continue reading Want to meet up?
Discrimination against B4 athletes within International Blind Sport
Charities supporting people living with vision impairments, including the Nystagmus Network and the Albinism Fellowship UK, have signed an open letter from B4 International Blind Sports, outlining concerns about discrimination … Continue reading Discrimination against B4 athletes within International Blind Sport
BBC charity appeal raises £8,000
Following transmission of the Nystagmus Network’s Radio 4 appeal, presented by Richard Osman, the charity has received universally positive feedback on the clarity of the broadcast’s message. One listener, in … Continue reading BBC charity appeal raises £8,000
Nystagmus in lockdown
In this Guest Post, Neil writes about his experiences of lockdown as a visually impaired person. I’m registered partially sighted and diagnosed with nystagmus and ocular albinism from birth. Both … Continue reading Nystagmus in lockdown
The impact of COVID-19 on visually impaired children
A guest post from Rosaleen Dempsey, RNIB Hi there I am from the children’s services in RNIB. Wonder if you would mind sharing a survey for families about the impact … Continue reading The impact of COVID-19 on visually impaired children
Let’s go for an eye test!
Our next webinar is all about going to a high street optician’s when you have nystagmus. Tuesday 12 May at 3pm You have had an eye test … what now … Continue reading Let’s go for an eye test!
How amazing are you?
In the run up to Nystagmus Awareness Day on 20 June 2020, we are once again asking you to share your amazing nystagmus success stories. Not only do these stories … Continue reading How amazing are you?