News – Page 17 – Nystagmus Network

Joint letter calls on health leaders to improve eye care for children and young people with learning disabilities

From the Visionary newsletter: SeeAbility’s Eye Care Champions have led the writing and submission of a letter to the Secretary of State for Health and Social Care and Chief Executive … Continue reading Joint letter calls on health leaders to improve eye care for children and young people with learning disabilities

Nystagmus in Down Syndrome – a Retrospective Notes Review

Nystagmus has been reported in up to 30% of people with Down Syndrome (DS), and yet is still not well understood. This study, by a team at Moorfields Eye Hospital, … Continue reading Nystagmus in Down Syndrome – a Retrospective Notes Review

Hands raised in the air in silhouette against a blue sky.

Volunteer for us!

The Nystagmus Network is a little charity with very big ideas. Do you want to be part of our exciting journey? If you have the skills and time to give … Continue reading Volunteer for us!

Nystagmus awareness at work

A guest post After my first proper job following university, I decided to ‘come out’ about my disability and support needs. I was worried this might make me stand out … Continue reading Nystagmus awareness at work

A thank you card from the Nystagmus Network showing an image of 2 boys taking part in a team building exercise.

It’s so nice to be appreciated

In 2021 the Nystagmus Network supported 591 people to come to terms with nystagmus, to find the support and information they needed. We’re even busier in 2022, as more and … Continue reading It’s so nice to be appreciated

Hanni negotiating a rock with two walking poles on Scafell Pike.

Hanni’s nystagmus story

Whilst the trustees oversee strategy and guide the direction of the charity, overall management and day-to-day operations are in the capable hands of our small dedicated staff team. Hanni is … Continue reading Hanni’s nystagmus story

Thank you, Harshal

The Nystagmus Network’s newest trustee, Dr Harshal Kubavat has a young child with nystagmus. Like many parents, he had never heard of nystagmus before. After supporting the charity’s work in … Continue reading Thank you, Harshal

Thank you, Vivien

Vivien Jones is the Founder and Honorary President of the Nystagmus Network. She started the charity in 1984 to support parents like her. Her son, Sam had recently been diagnosed … Continue reading Thank you, Vivien

Charlie and his fellow team mmebers wearing their Nystagmus Network sports tops.

Charlie’s Nystagmus Network football team

Charlie loves football. He also loves his team. When they were short of money to pay for the under 7s new kit, Charlie had the brilliant idea of asking the … Continue reading Charlie’s Nystagmus Network football team

Tim Hands – living with nystagmus

Tim has a whole clutch of awards for his work. He says: I ain’t done bad for a lad that can’t see too well. This is Tim’s amazing nystagmus story or … Continue reading Tim Hands – living with nystagmus