Eye Research Priority Survey Your input is needed into a new survey designed to refresh the James Lind Alliance Sight Loss and Vision research priorities* that were first published in 2013. Despite … Continue reading Could you help shape the direction of eye research in the UK?
We’re taking part in the #TheGreatGetTogether – please join us We are hosting two online get togethers this month. For people living with Acquired Nystagmus our online get together takes … Continue reading A winter warmer for darker days
Volunteer Donorfy CRM Developer and Trainer What will you be doing? What are we looking for? Experience and expertise in implementation of a CRM (preferably Donorfy) within a not for … Continue reading Could you help us with Donorfy?
We know you will enjoy reading about Carol’s experiences. She thinks of her nystagmus as a quirky trait that doesn’t define who she is and hopes you will find her … Continue reading Carol’s nystagmus story
Your chance to influence the direction of UK nystagmus research NUKE is the Nystagmus UK Eye research group. Members are currently researchers, clinicians, academics and patient support groups, including, of … Continue reading Next steps for NUKE
A Nystagmus Champion is someone who goes above and beyond to raise awareness of the condition, to raise funds or generally make life better for people living with nystagmus. The … Continue reading Nystagmus Champions of 2022
Having nystagmus hasn’t stopped Leicester’s Khalil Musani from forging a career in optics and helping others look after their eyes When Khalil secured a Saturday job at a Leicester opticians … Continue reading Leicester optician puts nystagmus in Focus
What is the psychological impact on parents immediately following a child’s diagnosis of congenital sensory impairment? Rebecca Greenhalgh, Trainee Clinical Psychologist at Coventry University is leading a new research project, … Continue reading New research explores parental experience of their child’s diagnosis
Following the announcement of a further national rail strike on Saturday 1 October, charity trustees have been obliged to take both Open Day and the AGM online. Notice is hereby … Continue reading Notice of the Nystagmus Network AGM
Nystagmus Network trustees donated £17,000 to the paediatric fund of the University of Southampton’s Gift of Sight appeal last December thanks to the generosity of our fundraisers and supporters. Someone … Continue reading Nystagmus Network invests £17,000 in research
