We started national and international Nystagmus Awareness Day, also known as Wobbly Wednesday, back in 2013. But every Wednesday is awareness day on our Facebook page. This means you can … Continue reading Every Wednesday is Nystagmus Awareness Day on Facebook
The Nystagmus Network is delighted to post some exciting news. In 2018 we are declaring 20 June the new permanent date for Nystagmus Awareness Day. Since 2013, we have celebrated … Continue reading Nystagmus Awareness Day 2018
We call our charity the Nystagmus Network, because it’s very important to us to help people affected by nystagmus to get together for mutual support. There is no better feeling … Continue reading It’s Tuesday – that’s Nystagmus Networking day on Facebook!
Every Monday over on our Facebook page we focus on a particular nystagmus-related topic to get the week started with a great conversation. Topics we have covered so far have included … Continue reading Monday Focus on Facebook
Chairman of the Nystagmus Network, Richard Wilson, formally received his OBE from Her Majesty The Queen at Windsor Castle on Friday. During his brief private conversation with Her Majesty, Richard … Continue reading Richard receives his OBE from Her Majesty the Queen
In 2018 we’re looking for people who want to do something amazing. We’ve got lots of opportunities lined up and we’re ready to give you masses of support to follow … Continue reading Could you do something extraordinary for nystagmus?
Parents often wonder when is the right time to talk to their children about nystagmus and what words to use. Our free to download booklet “Wobbly Eyes” can help. Covering … Continue reading Explaining nystagmus to a child
Anyone needing information or support from the Nystagmus Network can now speak to someone on the phone throughout normal office hours. From Monday to Friday, Sue will answer the phone … Continue reading Nystagmus Network launches new information and support line
Julian Jackson lost his sight in 2010 as the result of an inherited retinal condition. Since then he has become a visual impairment champion. He has worked with a leading … Continue reading The Nystagmus Network supports Julian’s Big Blind Walk
Research participation opportunity If you use audio description services to watch TV, you could help Victoria, from the University of Seville, with her survey of VI friendly TV. Please read … Continue reading Do you use audio description to watch TV?
