Matthew is a second year BA Geography student at Northumbria University, Newcastle. He also happens to have oculocutaneous albinism. He is passionate about increasing academic knowledge on the subject of albinism. His research is for a final year undergraduate dissertation project. Albinism, like many other disabilities, has the potential to have an impact on everyday … Continue reading Matthew’s research on albinism
Tag: research participation opportunity
Calling parents of 12-14 year olds – research questionnaire
Ifigeneia Manitsa is a Psychology researcher at Kingston University London and her research is about the social and academic inclusion of adolescents with and without visual impairments. She is currently conducting a study looking at the relationship between school engagement and social behaviour in adolescents with and without visual impairments. She is also interested in investigating teachers’ … Continue reading Calling parents of 12-14 year olds – research questionnaire
Research participation opportunity
People with nystagmus are being invited to contribute to medical research by sharing their experiences of accessing a patient information pack, designed to support people living with the little known and complex eye condition. The team at the University of Sheffield behind the Nystagmus Information Pack would like your help to review the pack and … Continue reading Research participation opportunity
Technology use in young people with impaired vision: a new study
Guest post from Saima Begum, University College London I am a student at University College London, studying at the Institute of Education and I am emailing to ask for your help with my Masters research project into Vision Impairment. This project aims to examine technology use in young people with vision impairment, and whether this … Continue reading Technology use in young people with impaired vision: a new study
Parents of adolescents with nystagmus: research participation opportunity
Ifigeneia Manitsa BEd, MSc, AFHEA (pictured) is a Psychology Researcher at Kingston University London. Her research is about the social and academic inclusion of adolescents with and without visual impairments. Ifigeneia has a Degree in Primary Education and a Masters in Special Education. Visual impairment has been her field of expertise for the past 7 years. Her latest … Continue reading Parents of adolescents with nystagmus: research participation opportunity
Help Fight for Sight study the effects of sight loss
Here’s a research participation opportunity thanks to our friends at Fight for Sight. “We’re launching an online survey to help demonstrate the personal impact of sight loss. We’re inviting everyone affected by sight loss or an eye condition – either personally or indirectly via someone they care for – to participate in the survey and … Continue reading Help Fight for Sight study the effects of sight loss
Calling all Caregivers – take part in research
Guest post by Jamie Enoch, Researcher at School of Health Sciences at City University London Are you a UK-based relative, friend or caregiver of someone living with a visual impairment? Do you have 10-15 minutes to spare? If yes, please consider taking our survey on your experience of support services. Thank you. Find out more … Continue reading Calling all Caregivers – take part in research
Thursday is research news day on Facebook
Every Thursday on our Facebook page we publish the latest news on nystagmus research or publish details of new nystagmus trials that you can take part in. We are currently supporting these trials: The Southampton University Hospital team need to find people with albinism and nystagmus, aged over 60 so that Mr Jay Self and … Continue reading Thursday is research news day on Facebook
Nystagmus research update from London
The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Maria Theodorou, Consultant Ophthalmologist at Moorfield’s … Continue reading Nystagmus research update from London
Nystagmus research update from Cardiff
The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Professor Jonathan T. Erichsen, DPhil, Professor of … Continue reading Nystagmus research update from Cardiff