How amazing is Amanda


Amanda is a long time supporter of the Nystagmus Network UK and our unofficial US spokesperson. As a professional freelance writer, who also has nystagmus, she is well placed to tell her amazing nystagmus story … My Nystagmus Journey: Fifth grade diagnosis and beyond Fifth grade – that’s when my life changed because of my … Continue reading How amazing is Amanda

How amazing is Gary?


Here’s Gary’s sporty nystagmus success story … Since 2014 I’ve been playing county cricket for Warwickshire Visually Impaired Cricket Club. The club comprises players of all ages (my shirt number is 49 – the age at which I made my debut) and varying levels of sight. Several of our players are registered blind and we … Continue reading How amazing is Gary?

How amazing is Maureen?


Maureen tells her own nystagmus success story … I started school in 1945. They didn’t have the pre-school checks they have now.  No-one had noticed anything out of the ordinary. I was riding a two wheel bike before I was 4. I used to bump into things and fall off regularly, but nobody saw anything … Continue reading How amazing is Maureen?

How amazing is Macy?


Like lots of children, Macy has nystagmus as well as more serious health problems. Here’s her story, as told by her Mum … In January 2016, Macy our baby girl suffered a sudden out of hospital cardiac arrest at 3 months old. After being resuscitated twice, once by paramedics at home and again at Wigan hospital, … Continue reading How amazing is Macy?

How amazing is Michael?


A nystagmus Dad writes: Michael is 19. In 1999 he was diagnosed with congenital idiopathic nystagmus at around 3 months of age. We immediately did an internet search to find out what nystagmus was. I couldn’t even spell it properly, but within a short time we found Nystagmus Network. This turned out to be a … Continue reading How amazing is Michael?

How amazing is Chris?


If you ever visit our Facebook page you will know Chris. She’s very knowledgeable about nystagmus – and sight impairment generally and so generous to everyone with her time and support. Here’s her amazing nystagmus story: Back in 1973, living at home with my parents, I read in our local paper about a new national organisation … Continue reading How amazing is Chris?

How amazing is Dave?


Here’s Dave’s nystagmus success story, in his own words. I have congenital nystagmus. The main limitation I have experienced is not being able to drive. However, at the age of 68, I can reflect on what I have been able to achieve in my life and feel very happy. I have been happily married for … Continue reading How amazing is Dave?

How amazing is Denni-Leigh?


A Mum’s story: Denni-Leigh was born weighing 5.15lbs on a sunny June morning. She was a perfectly beautiful newborn baby. Only at about 4 weeks old the health visitor noticed that something was wrong with her eyes. We were told that Denni-Leigh had congenital nystagmus, astigmatism and a squint and was extremely long-sighted. Being such … Continue reading How amazing is Denni-Leigh?

How amazing is James?


Nystagmus Dad, Robin, writes: My 9 year old son, James, has OC Albinism and Nystagmus, but he and I started learning the guitar together about 3 years ago ( he obviously struggled to see the music and the strings on the guitar, but, when blown up, he can read the score and any annotation written … Continue reading How amazing is James?

How amazing is Jac?


Jac is running a 2.5k fun run this month to raise awareness of nystagmus and fundraise for the Nystagmus Network. His Mum and Dad didn’t find out Jac had nystagmus till he was 3 years old and always tell him he can do anything he wants. We’re sure Jac will achieve great things! You can … Continue reading How amazing is Jac?