The Nystagmus Network is committed to supporting groundbreaking research, from understanding the root causes of nystagmus through to managing and treating the condition. Recently our trustees, Paul Rose and Harshal … Continue reading Nystagmus Network visits pioneering research in London
Category: Charity highlights
Our Facebook group for grandparents
When your child becomes a parent your relationship with them moves into an exciting new phase. Alongside that, you have an entirely new little person to get to know. It’s … Continue reading Our Facebook group for grandparents
Marsha’s message for Nystagmus Awareness Day 2024
Thank you to Marsha de Cordova for taking a few moments out of her busy schedule to celebrate with us Nystagmus Awareness Day 2024 in our Ruby Year. Watch Marsha’s … Continue reading Marsha’s message for Nystagmus Awareness Day 2024
It’s nearly Nystagmus Awareness Day 2024
Make sure you’re ready to take part in Nystagmus Awareness Day 2024 on 20 June. Your FREE digital programme has all the information and links you need. There’s the great … Continue reading It’s nearly Nystagmus Awareness Day 2024
Mike’s Southampton family send off
As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off
Booking is now open for our London event
Our next big nystagmus meet up takes place in London on Saturday 13 July, from 11am to 4pm. This is your chance to hear all the latest nystagmus news, learn … Continue reading Booking is now open for our London event
Walk with us
On 18 and 19 May we’re encouraging all our followers and supporters to get out for a walk. The weekend falls during Mental Health Awareness Week. Spending time outside with … Continue reading Walk with us
Join our virtual Easter Egg Hunt
🐰🌷 Ready to hop into some Easter fun? Join our virtual Easter Egg Hunt through our website to find hidden eggs🥚each with a letter on it to be discovered! Collect … Continue reading Join our virtual Easter Egg Hunt
Join us for a flipping fantastic celebration
Calling all pancake enthusiasts and creative cooks! It’s time to dust off your spatulas and put your culinary skills to the test because the Nystagmus Network is hosting an exciting … Continue reading Join us for a flipping fantastic celebration
George gives his oral evidence to the APPG
George has not yet completed his first month as an intern Information Support Officer with the Nystagmus Network. This week he was given a very special assignment, to give oral … Continue reading George gives his oral evidence to the APPG