Join Frances at Open Day

The Nystagmus Network’s volunteer Education Advocate, Frances Lilley has been supporting families with education for many years on behalf of the charity. She became a trustee in May 2016. She has a teenage daughter with congenital idiopathic nystagmus. Trained by IPSEA, Frances gives parents and carers one to one legally-based advice and support on how … Continue reading Join Frances at Open Day

Calling university applicants

A guest post on behalf of Rachel, from the University of Birmingham: I am looking for students with vision impairment in the UK who are currently applying for higher education to evaluate some guidance material we have put together. Vouchers for those who take part! Please contact me at Find out more by clicking … Continue reading Calling university applicants

A lesson in nystagmus

The Nystagmus Network has a free to download lesson plan about nystagmus. Designed for use in schools and preschools on Nystagmus Awareness Day or any other day of the year, the aim is to raise awareness of nystagmus and its wider effects and to help a child with nystagmus feel more included in the classroom. … Continue reading A lesson in nystagmus

Katie lobbies MPs

A Wandsworth student visited the House of Commons to lobby Parliament this week on behalf of Young Vision Alliance (YVA), according to an article in Your Local Guardian. Katie, who is in Year 13 at Putney High School, represented YVA as part of their “Our Futures Matter” campaign. The alliance are campaigning for children with vision impairment to … Continue reading Katie lobbies MPs

Education information for all

Have you visited our online Education Resource HUB? You’ll find everything you need to know about supporting a child through education, as a parent, carer or teacher, from the early years right through to college and beyond. We also offer an education advocacy service to members. Visit the HUB here.

Our education advocacy service

Members of the Nystagmus Network are entitled to free education advocacy support and information whenever and for as long as they need it. This service is provided free of charge to subscribed members of the charity by our IPSEA trained volunteer education advocate, Frances Lilley. In 2019 we will double our capacity to support families … Continue reading Our education advocacy service

Education Resource HUB – launch

At Open Day 2018 the Nystagmus Network’s volunteer Education Advocate, Frances Lilley, officially launched the charity’s Education Resource HUB. The HUB is the result of years of research and experience and brings together in one place the resources parents and carers need to navigate their way through mainstream education support for a child with nystagmus, … Continue reading Education Resource HUB – launch

Help shape education support for children with vision impairment

Nystagmus Network volunteer education advocate and trustee, Frances Lilley, is a member of a group called the Young Vision Alliance. The Alliance is researching the difficulties children and young people are facing in education prior to an education campaign later this year which will be calling for the government to address key issues. You can … Continue reading Help shape education support for children with vision impairment