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Supporting people living with nystagmus

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Category: Living with nystagmus

How amazing is Rosine?


Hi there. I just wanted to share with you the amazing journey I’ve embarked on in Blind Tennis, a sport that has given me my freedom, my independence and my … Continue reading How amazing is Rosine?

Posted on June 11, 2018Author Sue RickettsCategories Charity highlights, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, tennis, ZING

How amazing is Charlie?


I’m Charlie, I’m 14 years old and live in Lincoln. I live with my parents, my brother and sister. I’m currently studying for my GCSEs. I would love to do Maths, Psychology … Continue reading How amazing is Charlie?

Posted on June 10, 2018June 9, 2018Author Sue RickettsCategories Guest posts, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, ZING

How amazing is Matt?


Matt has nystagmus, but, as his Mum tells us, he is on the road to a stellar career. Matt is currently the director / choreographer for a production of Joseph … Continue reading How amazing is Matt?

Posted on June 9, 2018June 9, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, ZING

How amazing is Katrina?


Katrina thinks she’s just a regular student who happens to have nystagmus – we think she’s an amazing nystagmus ambassador! Here’s Katrina’s nystagmus story … I am 19 years old. … Continue reading How amazing is Katrina?

Posted on June 9, 2018Author Sue RickettsCategories Charity highlights, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, Big Blind Walk, ZING

How amazing is Mehak?


Growing up with nystagmus and albinism, I hated school and social interaction. I was always self-conscious and easily embarrassed that my weak eyesight, poor balance and hypersensitivity to sunlight made … Continue reading How amazing is Mehak?

Posted on June 6, 2018Author Sue RickettsCategories Fundraising, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, ZING

How amazing is Suzanne?


I wanted to share my story to show people with nystagmus that it doesn’t have to stop you from fulfilling your dreams. I was born with nystagmus and my parents … Continue reading How amazing is Suzanne?

Posted on June 4, 2018Author Sue RickettsCategories Fundraising, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, ZING

How amazing is Hannah?


When I first started school I really struggled to read. It took me months and months to read the first Harry Potter book for myself in large print. I got … Continue reading How amazing is Hannah?

Posted on June 2, 2018June 2, 2018Author Sue RickettsCategories Fundraising, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, ZING

Please vote for Ben


Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … … Continue reading Please vote for Ben

Posted on May 25, 2018Author Sue RickettsCategories Living with nystagmusTags albinism, Ben Haynes, competition, music, nystagmus, vote

Nystagmus Network article published


To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication … Continue reading Nystagmus Network article published

Posted on May 22, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags article, awareness, children, nystagmus, publications, Wobbly Eyes
A child swimming underwater.

How amazing are you?


Have you done something amazing, something you never thought possible, because you have nystagmus? Has your child exceeded all your expectations? If so, we want to hear from you. Last … Continue reading How amazing are you?

Posted on April 26, 2018May 4, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags adult, amazing nystagmus success stories, children, fundraising, living with nystagmus, nystagmus

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