Funding research into blindness


Please listen to the ‘In Touch’ programme on BBC Radio 4 to catch Head of Research at Fight for Sight, Dr Rubina Ahmed and Professor Chris Hammond talking about the launch of their new 2020 campaign. During the show, they’ll discuss the ‘1 to 20’ funding gap – only 1% of public funding is dedicated … Continue reading Funding research into blindness

Adam Hills: Take His Legs


This Friday evening at 11.30pm on Channel 4, straight after The Last Leg, you can catch a documentary following the comedian and Last Leg co-host, Adam Hills as he embarks on a personal, physical and emotional journey to live out his boyhood dream to play competitive rugby league. The film charts the story of the … Continue reading Adam Hills: Take His Legs

Fight for Sight launches survey to gather insights on personal impact of sight loss


GUEST POST Fight for Sight is launching an online survey to gather broader insights into the personal impact of sight loss and eye conditions. The charity invites those affected by sight loss – either personally or indirectly via someone they care for – to participate in the survey and strengthen the case for urgently needed … Continue reading Fight for Sight launches survey to gather insights on personal impact of sight loss

Handheld OCT can predict future vision in infantile nystagmus


Dr Mervyn Thomas of the Ulverscroft Eye Unit, University of Leicester developed a grading system for arrested retinal development as a med student in 2011. 8 years later the team shows it can predict future vision in preverbal children with nystagmus. This development highlights the importance of research investment in diagnostics and also answers the … Continue reading Handheld OCT can predict future vision in infantile nystagmus

Seeing Beyond the Eyes project wins Vision UK John Thompson Award for Excellence in Services, Support and Care 2019


The Nystagmus Network is delighted to share news of the success of Visualise Training’s Seeing Beyond the Eyes Project. Visualise Training’s, Founder, Daniel Williams, was our keynote speaker at Open Day 2019. Vision UK, the umbrella organisation which leads collaboration with partners across the eye health and sight loss sector recognised the ground-breaking work being … Continue reading Seeing Beyond the Eyes project wins Vision UK John Thompson Award for Excellence in Services, Support and Care 2019

Nystagmus Network funding leads to discovery of new algorithm


A paper relating to a research project by members of the Cardiff University team and others, which the Nystagmus Network funded, has been formally published this week. The report describes an algorithm which takes an eye-tracking recording and automatically separates it into its component parts (quick phases, slow phases and foveations*), allowing several measures related … Continue reading Nystagmus Network funding leads to discovery of new algorithm

Can I tell you about nystagmus?


The Nystagmus Network is delighted to share news of the launch today of a brand new book about nystagmus. Written by Nadine Neckles, the book looks at nystagmus from a child’s point of view and provides insights for parents and professionals alike. Nadine is a friend of the Nystagmus Network and previously contributed an article … Continue reading Can I tell you about nystagmus?

Wobbly Eyes in German


The Nystagmus Network UK sends huge congratulations to Hanna and her fellow trustees for the successful launch, at the end of 2018, of the German Nystagmus Netzwerk. Our two organisations are working closely together to ensure that information and support is available for German speakers everywhere, affected by nystagmus. To this end, today we celebrate … Continue reading Wobbly Eyes in German

Have you got our new number?


The registered charity number for the Nystagmus Network has changed. Our new number is 1180450. This marks our successful transition from humble charity to a Charitable Incorporated Organisation, as voted for by our members at our AGM in September. Only our number has changed. We remain a membership organisation serving the needs of the nystagmus … Continue reading Have you got our new number?