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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

Researcher presenting at Open Day.

More rejections than Harry Potter?


  A report by John Sanders who, at different times, has been a Nystagmus Network trustee, as well as an employee and continues to be a member of the charity. … Continue reading More rejections than Harry Potter?

Posted on March 28, 2018April 3, 2018Author Sue RickettsCategories researchTags congenital nystagmus, Helena Lee, University of Leicester, University of Southampton

Thank you to Mike and Studley Wood GC


Nystagmus Network trustee and golfing enthusiast, Peter Greenwood, traveled to Studley Wood Golf Club in Oxfordshire earlier this week to receive, on behalf of the charity, a cheque for £4,300. … Continue reading Thank you to Mike and Studley Wood GC

Posted on March 27, 2018April 3, 2018Author Sue RickettsCategories Charity highlights, Events, Fundraising

Nystagmus Network Snow Camps 2018


Thanks to Outspan Rebels team founder, Jamie Fuller, who has managed to secure sponsorship from the Snow Sports Foundation, there will be two Nystagmus Network Snow Camps this summer. These … Continue reading Nystagmus Network Snow Camps 2018

Posted on March 22, 2018Author Sue RickettsCategories EventsTags skiing, Snow Camp

The Outspan Rebels VI ski team


Jamie and Josh Fuller are well known in the nystagmus community as the father and son team who delivered an inspirational presentation at Open Day last September. Jamie organised the … Continue reading The Outspan Rebels VI ski team

Posted on March 21, 2018Author Sue RickettsCategories Charity highlightsTags Outspan Rebels VI ski team, skiing

A photographer’s dream come true


Internationally acclaimed photographer and Nystagmus Network member, David Katz, has just returned from the assignment of a lifetime, covering the Winter Paralympics in Pyeongchang. He has put together an incredible … Continue reading A photographer’s dream come true

Posted on March 21, 2018Author Sue RickettsCategories Open Day 2018Tags David Katz, Pyeongchang, Winter Paralympics
Gift Aid it - logo

Have you signed up for Gift Aid?


Did you know that for every pound you donate to the Nystagmus Network and for every pound of your annual membership subscription we can claim an additional 25p back from … Continue reading Have you signed up for Gift Aid?

Posted on March 19, 2018September 3, 2018Author Sue RickettsCategories Charity highlightsTags Gift Aid

Sue will be at ANUK conference


Nystagmus Network’s Executive Information and Development Manager, Sue, will be speaking at the Aniridia UK London meeting on Saturday, 14 April. ANUK warmly invite everyone affected by aniridia to join … Continue reading Sue will be at ANUK conference

Posted on March 13, 2018Author Sue RickettsCategories EventsTags aniridia
VIEW logo.

Meet Sue at VIEW


This Thursday, Sue from Nystagmus Network, will be attending the annual VIEW conference for teachers and specialists in educating visually impaired children and young people. The event takes place over … Continue reading Meet Sue at VIEW

Posted on March 13, 2018Author Sue RickettsCategories EventsTags Birmingham, education, QTVI, VIEW

Sue attends Partially Sighted Society Conference 2018


Last Friday Sue attended the PSS very first Sight Loss conference in Doncaster on behalf of the Nystagmus Network. The day was attended by around 100 people with visual impairment, … Continue reading Sue attends Partially Sighted Society Conference 2018

Posted on March 12, 2018March 12, 2018Author Sue RickettsCategories EventsTags cataract surgery, Partially Sighted Society

Open Day 2018 – booking open soon


We are just finalising details of our annual Open Day 2018. We shall once again be in central Birmingham. The date is Saturday, 29 September. The venue is the same … Continue reading Open Day 2018 – booking open soon

Posted on March 8, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags membership

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