Are you over 60 with ocular or oculocutaneous albinism?


We are seeking potential research candidates on behalf of researchers in Southampton (Jay Self and Helena Lee) who must be over the age of 60 and have any form of albinism. Thank you to those who have already responded. We have already found 12 people, but we really need 20 for a viable study. If … Continue reading Are you over 60 with ocular or oculocutaneous albinism?

Fight for Sight partners with the Nystagmus Network for its next grant round


Fight for Sight has today announced a call for Small Grant Award applications. The UK’s leading eye research charity is this year able to offer thirteen awards to fund sight saving clinical research, ten of which are being jointly funded with other charities. NEW THIS YEAR Fight for Sight / Nystagmus Network offer TWO Small … Continue reading Fight for Sight partners with the Nystagmus Network for its next grant round

Sue attends APPG meeting on eye research


Sue attended a meeting yesterday at the House of Commons of the All Party Parliamentary Group for Eye Health and Visual Impairment. The subject of the meeting was eye research. Sue was the guest of Fight for Sight, whose Chief Executive, Michele Acton, gave a powerful account of the current sight research position and admirably … Continue reading Sue attends APPG meeting on eye research

How amazing are you?


Have you done something amazing, something you never thought possible, because you have nystagmus? Has your child exceeded all your expectations? If so, we want to hear from you. Last year we heard about the fantastic swimming and fundraising achievements of Annabelle, Tyler and Poppy. This year we want to hear your stories. Between now and … Continue reading How amazing are you?

Nystagmus in the open and the Big Blind Walk


On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs of his 1,000 mile Big Blind Walk? On that day Julian will be walking from Helmsdale to Dunbeath in the Scottish Highlands along the A9 … Continue reading Nystagmus in the open and the Big Blind Walk

Nystagmus Awareness Day – for clinics


Please help us to promote national and international Nystagmus Awareness Day, on Wednesday 20 June, in clinics and hospitals all over the UK and the world. We have free to download PowerPoint presentations which can be displayed on a screen in reception. We also have a free bunting template. For those organising a fundraising event, … Continue reading Nystagmus Awareness Day – for clinics

Nystagmus Awareness Day – for schools


Schools can take part in Nystagmus Awareness Day, especially if there is a pupil who has nystagmus. Talking about nystagmus, celebrating ‘nystagmus in the open‘ will help us raise awareness of the condition and help the children affected explain it to their friends. This can help remove the sense of isolation some children feel. We … Continue reading Nystagmus Awareness Day – for schools

Nystagmus Awareness Day – for sports clubs


Calling all sports and athletics clubs – we want you to join us for ‘nystagmus in the open‘ on national and international Nystagmus Awareness Day on Wednesday 20 June. We need you to help us prove that children and adults with nystagmus can take part in sport and fitness, despite their visual impairment. So please … Continue reading Nystagmus Awareness Day – for sports clubs