The Outspan Rebels VI ski team


Jamie and Josh Fuller are well known in the nystagmus community as the father and son team who delivered an inspirational presentation at Open Day last September. Jamie organised the Nystagmus Network’s first ever ski experience last year and this year they have promised us not one but two ski camps. The Outspan Rebels VI … Continue reading The Outspan Rebels VI ski team

Sue will be at ANUK conference


Nystagmus Network’s Executive Information and Development Manager, Sue, will be speaking at the Aniridia UK London meeting on Saturday, 14 April. ANUK warmly invite everyone affected by aniridia to join them for the day. There will be lots of opportunity to meet and share experiences with other people who have aniridia. There will also be … Continue reading Sue will be at ANUK conference

Meet Sue at VIEW


This Thursday, Sue from Nystagmus Network, will be attending the annual VIEW conference for teachers and specialists in educating visually impaired children and young people. The event takes place over two days in Birmingham. Delegates will find Sue in the exhibition area, eager to demonstrate the support and information the Nystagmus Network has to offer … Continue reading Meet Sue at VIEW

Sue attends Partially Sighted Society Conference 2018


Last Friday Sue attended the PSS very first Sight Loss conference in Doncaster on behalf of the Nystagmus Network. The day was attended by around 100 people with visual impairment, their family members and friends, carers and health professionals. It was an opportunity to hear from senior medical and research specialists as well as listen … Continue reading Sue attends Partially Sighted Society Conference 2018

Open Day 2018 – booking open soon


We are just finalising details of our annual Open Day 2018. We shall once again be in central Birmingham. The date is Saturday, 29 September. The venue is the same as last year, the MacDonald Burlington Hotel, across the road from Grand Central. We already have some very exciting speakers lined up. We will also … Continue reading Open Day 2018 – booking open soon

David Katz – our special guest speaker at Open Day 2018


We are delighted to announce that David Katz, the internationally acclaimed photographer, will be joining us as our special guest speaker at our annual Open Day on 29 September. David was with us all in spirit last year, of course, when we were honoured and privileged to have been granted permission to premier his amazing … Continue reading David Katz – our special guest speaker at Open Day 2018

Marsha de Cordova MP – our Open Day keynote speaker


We are delighted to announce that we shall be joined on Open Day this year by Shadow Minister for Disabilities, Marsha de Cordova. Marsha has nystagmus and is severely sight impaired. She recently explained to BBC Radio 4’s Intouch programme how she manages her vision problem as part of her busy professional life. The photograph … Continue reading Marsha de Cordova MP – our Open Day keynote speaker