Thanks to Outspan Rebels team founder, Jamie Fuller, who has managed to secure sponsorship from the Snow Sports Foundation, there will be two Nystagmus Network Snow Camps this summer. These will take place at the Snow Dome, Milton Keynes, on Sunday 17 June and Sunday 15 July. If you would like to come along for … Continue reading Nystagmus Network Snow Camps 2018
Jamie and Josh Fuller are well known in the nystagmus community as the father and son team who delivered an inspirational presentation at Open Day last September. Jamie organised the Nystagmus Network’s first ever ski experience last year and this year they have promised us not one but two ski camps. The Outspan Rebels VI … Continue reading The Outspan Rebels VI ski team
Internationally acclaimed photographer and Nystagmus Network member, David Katz, has just returned from the assignment of a lifetime, covering the Winter Paralympics in Pyeongchang. He has put together an incredible film to showcase his experience. Meet David at our annual Open Day in Birmingham on Saturday 29 September.
Did you know that for every pound you donate to the Nystagmus Network and for every pound of your annual membership subscription we can claim an additional 25p back from the UK government, provided you are a UK tax payer? This means a huge amount to a small charity like us and costs you absolutely … Continue reading Have you signed up for Gift Aid?
Nystagmus Network’s Executive Information and Development Manager, Sue, will be speaking at the Aniridia UK London meeting on Saturday, 14 April. ANUK warmly invite everyone affected by aniridia to join them for the day. There will be lots of opportunity to meet and share experiences with other people who have aniridia. There will also be … Continue reading Sue will be at ANUK conference
This Thursday, Sue from Nystagmus Network, will be attending the annual VIEW conference for teachers and specialists in educating visually impaired children and young people. The event takes place over two days in Birmingham. Delegates will find Sue in the exhibition area, eager to demonstrate the support and information the Nystagmus Network has to offer … Continue reading Meet Sue at VIEW
Last Friday Sue attended the PSS very first Sight Loss conference in Doncaster on behalf of the Nystagmus Network. The day was attended by around 100 people with visual impairment, their family members and friends, carers and health professionals. It was an opportunity to hear from senior medical and research specialists as well as listen … Continue reading Sue attends Partially Sighted Society Conference 2018
We are just finalising details of our annual Open Day 2018. We shall once again be in central Birmingham. The date is Saturday, 29 September. The venue is the same as last year, the MacDonald Burlington Hotel, across the road from Grand Central. We already have some very exciting speakers lined up. We will also … Continue reading Open Day 2018 – booking open soon
We are delighted to announce that David Katz, the internationally acclaimed photographer, will be joining us as our special guest speaker at our annual Open Day on 29 September. David was with us all in spirit last year, of course, when we were honoured and privileged to have been granted permission to premier his amazing … Continue reading David Katz – our special guest speaker at Open Day 2018
We are delighted to announce that we shall be joined on Open Day this year by Shadow Minister for Disabilities, Marsha de Cordova. Marsha has nystagmus and is severely sight impaired. She recently explained to BBC Radio 4’s Intouch programme how she manages her vision problem as part of her busy professional life. The photograph … Continue reading Marsha de Cordova MP – our Open Day keynote speaker