Do you flush your contact lenses down the loo?


With so much talk at the moment about plastic pollution, here’s one small way in which the vision impaired community can help. We can stop flushing our used contact lenses down the loo! In a BBC article this week, Environment Correspondent, Matt McGrath, explains how discarded disposable contact lenses can end up as plastic waste … Continue reading Do you flush your contact lenses down the loo?

Guest post – questions for Harry’s consultant


Harry and his parents had many, many questions before finally deciding to go ahead with null point surgery. Here are just some of the questions the family asked, with the answers they received from the surgical team: Is this a complicated procedure? Yes. Operating on eyes in general is complicated, but when 2 eyes are to … Continue reading Guest post – questions for Harry’s consultant

VI skiing this Bank Holiday weekend!


We’re delighted to confirm another opportunity to ski with the Nystagmus Network and the Outspan Rebels VI ski team. On Sunday 26th August we will be running a two-hour ski lesson at £20 per person at Snozone, Milton Keynes. From 2:30pm to 4:30pm we will have a beginners’ session on the starter slope and intermediates’ on … Continue reading VI skiing this Bank Holiday weekend!

Guest post – Harry’s null point surgery decision


15 year old Harry has undergone the Anderson Kestenbaum procedure this summer. Parents often ask what null point surgery involves. Thorough consultation with the ophthalmologist and the surgical team are key.  Harry’s Dad, Ian, asked us to share his son’s experience. Ian, writes: My son, Harry is now aged 15 and was born with idiopathic nystagmus. … Continue reading Guest post – Harry’s null point surgery decision

Introducing Harry’s story


This is Harry. He’s 15 years old. He has nystagmus and, as you can probably tell from the photo, he also has a fairly marked head turn associated with his null point. This summer, Harry and his parents decided it was right for him to undergo surgery. Known commonly as ‘null point surgery’, because it seeks … Continue reading Introducing Harry’s story

Glen’s taking the abseil challenge. Could you?


Glen is a member of the Nystagmus Network and a true friend of the charity. We were privileged to meet him last year when he led a workshop at Open Day on building social networks. You can read all about Glen’s adventures as a successful young man about London, who just happens to have aniridia … Continue reading Glen’s taking the abseil challenge. Could you?

Claire’s taking the leap for nystagmus. Want to join her?


Introducing Claire, the next member of Team Nystagmus Network Abseil. Claire is a keen rock climber, so abseiling her way down the ArcelorMittal Orbit is going to be a walk in the park! She’s doing it all to raise money for nystagmus research at Moorfields and UCL. If you’d like to join Claire, please contact … Continue reading Claire’s taking the leap for nystagmus. Want to join her?

Nystagmus Research Conference 2018


The Nystagmus Network is hosting a nystagmus research conference later this year. Delegates are senior researchers, academics and clinicians from the top UK nystagmus research centres, with expertise in testing and diagnostics, genetics and technological intervention. We will also be joined by a representative from Fight for Sight, our research funding partner. Agenda items include … Continue reading Nystagmus Research Conference 2018