Tim has a whole clutch of awards for his work. He says: I ain’t done bad for a lad that can’t see too well. This is Tim’s amazing nystagmus story I was born with Congenital Nystagmus. I’d probably describe my sight as middle of the range, but still not good enough to drive. After leaving … Continue reading How amazing is Tim?
Earlier this year, Doug ran the Royal Parks Half Marathon for the Nystagmus Network. He raised £200. Doug says: 13.1 miles. 25,000 steps, a step for every time someone has told me I need to have my glasses checked. This is Doug’s amazing nystagmus story I was born with congenital horizontal nystagmus and astigmatism, thought … Continue reading How amazing is Doug?
The Annual Report 2020 by trustees of the Nystagmus Network is now lodged with the Charity Commission and available to the public to read. 2020 was undoubtedly a most challenging year for the nystagmus community, the Nystagmus Network, people and services everywhere. Despite the challenges of Covid-19, however, Chair of Trustees, Tim Cuddeford is pleased … Continue reading Trustees publish their annual review
This lovely scented candle is specially created for the Nystagmus Network by Oli at No. 14 The Wick to celebrate Nystagmus Awareness Day 2021. The scent is Bergamot and Sage using a blend of essential and fragrance oils. The oils have been chosen for the following aromatherapy attributes. BERGAMOT – Uplifting and refreshing. Reduces stress and anxiety SAGE … Continue reading Special edition scented candle raises funds for the Nystagmus Network
Since 2014 all UK local authorities are required to put information about services for families with disabled children in a special web page called the Local Offer. Have you found yours? Do you use it? Is the Nystagmus Network listed as a support service? We’re trying to make sure that everyone receiving a diagnosis of … Continue reading Do you use your local offer?
Children’s author, Tim Pearce who modestly describes himself as ‘the favourite children’s author you’ve never heard of’ joined the Nystagmus Network earlier this week to lead a fun and inspiring story writing workshop for children. Tim began by sharing his journey to publishing his first book ‘Secret Agent Striker’ and then gave us a sneaky … Continue reading Thank you, Tim
The next round of small grant awards for nystagmus research is now open for application. The grant, funded jointly by Fight for Sight and the Nystagmus Network is worth up to £15,000. The Fight for Sight / Nystagmus Network Small Grant Award One award to support clinical research to address visual impairment associated with nystagmus, focusing on … Continue reading Nystagmus research grant funding open for applications
The Nystagmus Network now produces a digital newsletter for Dispensing Opticians and Optometrists. The first edition has just been published, bringing nystagmus news, stories and information directly to high street and community practices. Read the newsletter and subscribe here
Did you miss the children’s online writing workshop with fabulous children’s author, Helen Rutter? What a shame. That means you didn’t get to hear all about Helen’s inspiration behind her book ‘The Boy Who Made Everyone Laugh’ and you didn’t get to meet her dog, Billy Whizz! Never mind. There are two more workshops still … Continue reading Children’s writing workshops this summer
Twelve year old Georgie will be baking 100 cookies in honour of the memory of Captain Sir Tom Moore this weekend. That’s her #CaptainTom100 challenge to raise funds for the Nystagmus Network. We’re so grateful for your support, Georgie. We know those cookies are going to be yummy! Please sponsor Georgie here Start your #CaptainTom100 … Continue reading Georgie’s Captain Tom 100 challenge