We join our sister charity, Albinism Fellowship UK, today in celebrating Albinism Awareness Day, with a special guest blog post from AFUK Chair, Roselle Potts. Help us to raise positive awareness on our international campaign day June 13th is an important date for people with albinism everywhere. It’s International Albinism Awareness Day, when people with … Continue reading Albinism Awareness Day
Hi there. I just wanted to share with you the amazing journey I’ve embarked on in Blind Tennis, a sport that has given me my freedom, my independence and my life, whilst living with Nystagmus, strabismus and astigmatism! A couple of weeks ago I was part of the team of 8 representing Great Britain in … Continue reading How amazing is Rosine?
I’m Charlie, I’m 14 years old and live in Lincoln. I live with my parents, my brother and sister. I’m currently studying for my GCSEs. I would love to do Maths, Psychology and Government and Politics A levels. Eventually, I’d like to train as a Barrister in Criminal Law. My life growing up has always been a … Continue reading How amazing is Charlie?
Matt has nystagmus, but, as his Mum tells us, he is on the road to a stellar career. Matt is currently the director / choreographer for a production of Joseph in our local area later this year. There are 50 young people in the show and he works tirelessly for the group. He has been … Continue reading How amazing is Matt?
Tickets to the biggest UK nystagmus event of the year will soon be available to book. Subscribed members of the charity will be able to book their priority free tickets to our annual Open Day from 12.00 midday on Thursday 26 June. Members will be notified with details of how to book their places by … Continue reading Open Day tickets for members – available soon
Katrina thinks she’s just a regular student who happens to have nystagmus – we think she’s an amazing nystagmus ambassador! Here’s Katrina’s nystagmus story … I am 19 years old. I attended a mainstream school and was treated like everyone else. I felt no different. In my exams I had A3 papers and extra time, … Continue reading How amazing is Katrina?
Need a handy guide to how the eye works and what all the parts are called? This great guide from our friends at Fight for Sight will help you understand more the next time you visit the eye clinic. Anatomy of the eye
Rocco is 6 years old. He has Ocular Albinism and nystagmus, he also has other disabilities, but, for the first time in his life, his parents have got a report saying he was age appropriate at reading. They are totally thrilled because they never thought he’d read. Well done, Rocco!
Vicky is a nystagmus Mum who came up with a really different way to raise awareness of nystagmus in the run up to Nystagmus Awareness Day on 20 June. She tells us: “Here are some rocks I’ve painted as part of the “Rocks of Swindon” project about hiding and finding rocks around Swindon. I thought … Continue reading A unique way to raise awareness
Growing up with nystagmus and albinism, I hated school and social interaction. I was always self-conscious and easily embarrassed that my weak eyesight, poor balance and hypersensitivity to sunlight made me rubbish at activities like sports and hiking. I was, however, always good at academics and especially loved reading. In my early years at school, … Continue reading How amazing is Mehak?