Guest post by Ana Semrov, PhD student and study researcher, Vision and Eyes research team at UCL Childhood visual impairment can have a significant impact on a person across their whole … Continue reading What shapes quality of life of visually impaired children and young people?
Impact of the COVID-19 pandemic on individuals with nystagmusand an exploration of public assumptions about the condition: an electronic questionnaire study The study explored the self-reported impact of the COVID-19 … Continue reading Perceptions of nystagmus and the impact of the Covid-19 pandemic
Leicester research team awarded prestigious prize from the Royal College of Ophthalmologists Image credit: Royal College of Ophthalmologists A team of specialist eye doctors at the University of Leicester have … Continue reading Congratulations, team Leicester
The Nystagmus Network is marking Glaucoma Awareness Week 2022, the UK’s national week to raise awareness of glaucoma. The theme for this year is ‘Put your sight in the spotlight’, … Continue reading Glaucoma Awareness Week 2022
From the Visionary newsletter: SeeAbility’s Eye Care Champions have led the writing and submission of a letter to the Secretary of State for Health and Social Care and Chief Executive … Continue reading Joint letter calls on health leaders to improve eye care for children and young people with learning disabilities
Nystagmus has been reported in up to 30% of people with Down Syndrome (DS), and yet is still not well understood. This study, by a team at Moorfields Eye Hospital, … Continue reading Nystagmus in Down Syndrome – a Retrospective Notes Review
The Nystagmus Network is a little charity with very big ideas. Do you want to be part of our exciting journey? If you have the skills and time to give … Continue reading Volunteer for us!
A guest post After my first proper job following university, I decided to ‘come out’ about my disability and support needs. I was worried this might make me stand out … Continue reading Nystagmus awareness at work
In 2021 the Nystagmus Network supported 591 people to come to terms with nystagmus, to find the support and information they needed. We’re even busier in 2022, as more and … Continue reading It’s so nice to be appreciated
Whilst the trustees oversee strategy and guide the direction of the charity, overall management and day-to-day operations are in the capable hands of our small dedicated staff team. Hanni is … Continue reading Hanni’s nystagmus story
