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Supporting people living with nystagmus

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Tag: nystagmus network

Nikita smiles for the camera

Thank you, Nikita


On World Sight Day 2020, Nikita was named an Eye Health Hero by the IAPB (the International Agency for the Prevention of Blindness). Nominated for her innovative work in perimetry, … Continue reading Thank you, Nikita

Posted on December 13, 2020December 14, 2020Author Sue RickettsCategories Nystagmus heroes, research, Thank yousTags IAPB, nystagmus, nystagmus network
Nadine smiles for the camera

Thank you, Nadine


Thanks to her book ‘Can I tell you about nystagmus?’, children and their parents feel better able to explain nystagmus to others. In 2020, with the country in lockdown and … Continue reading Thank you, Nadine

Posted on December 12, 2020December 14, 2020Author Sue RickettsCategories Education, Information and Support, Nystagmus heroes, Parent stories, Thank yousTags nystagmus, nystagmus network
3 woolly nystagmus mascots

Sold out!


Thank you to everyone who has ordered a woolly nystagmus mascot this year. We are now officially sold out. Together you have raised £360 and given new homes to 72 … Continue reading Sold out!

Posted on December 11, 2020December 17, 2020Author Sue RickettsCategories Charity highlights, FundraisingTags mascots, nystagmus, nystagmus network, Thank you
Mervyn smiles for the camera.

Thank you, Mervyn


Nystagmus can be challenging to diagnose in children and often the level of sight loss a newly diagnosed child will experience is unclear, leading to significant anxiety for parents who … Continue reading Thank you, Mervyn

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Information and Support, Living with nystagmus, Nystagmus heroes, research, Thank yousTags nystagmus, nystagmus network
Libby smiles at the camera.

Thank you, Libby


Inspired by her 2 younger sisters, who both have nystagmus, final year geography student, Libby chose to explore the experiences of young visually impaired adults in their local space and … Continue reading Thank you, Libby

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Nystagmus heroes, research, Thank yousTags nystagmus, nystagmus network
Julia and her young daughter smile for the camera. They are at the seaside and the child is holding a toy windmill.

Thank you, Julia


Living with the triple whammy of nystagmus, myopia and astigmatism, Julia is an accomplished musician. She also sings in choirs, which often happens in poorly lit churches. In her blog … Continue reading Thank you, Julia

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Living with nystagmus, Nystagmus heroes, Thank yousTags nystagmus, nystagmus network
Josh and his family smile for the camera.

Thank you, Josh


Josh can’t see rain – can you? Josh was born with nystagmus and ocular albinism, but he hasn’t let that hold him back. Josh has been a primary school teacher … Continue reading Thank you, Josh

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Living with nystagmus, Nystagmus heroes, Thank yousTags nystagmus, nystagmus network
Jaina smiles at the camera.

Thank you, Jaina


Jaina joined the Nystagmus Network team in August 2020 as an intern, spending some time to gain experience of working in a small charity. Jaina was hugely helpful in the … Continue reading Thank you, Jaina

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Nystagmus heroes, Thank yousTags nystagmus, nystagmus network
A banner at a fundraising stall.

Thank you, Emma


For Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. … Continue reading Thank you, Emma

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Fundraising, Thank yousTags nystagmus, nystagmus heroes, nystagmus network, Thank you
a Christmas bauble

Digital Nystagmus Network Christmas cards


Bring a little joy to far away friends and family this festive season with a Nystagmus Network digital Christmas card. 6 designs to choose from. Digital Christmas cards here

Posted on December 4, 2020December 4, 2020Author Sue RickettsCategories Charity highlights, FundraisingTags Christmas cards, digital, nystagmus, nystagmus network

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