Your nystagmus research questions answered – question 6


We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Jay Self (JS), a Consultant Paediatric Ophthalmologist at University of Southampton and nystagmus researcher and Helena Lee (HL), a Consultant Ophthalmologist at University of … Continue reading Your nystagmus research questions answered – question 6

Your nystagmus research questions answered – question 5


We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Jay Self (JS), a Consultant Paediatric Ophthalmologist at University of Southampton and nystagmus researcher and Helena Lee (HL), a Consultant Ophthalmologist at University of … Continue reading Your nystagmus research questions answered – question 5

Your nystagmus research questions answered – question 4


We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Jay Self (JS), a Consultant Paediatric Ophthalmologist at University of Southampton and nystagmus researcher and Helena Lee (HL), a Consultant Ophthalmologist at University of … Continue reading Your nystagmus research questions answered – question 4

Your nystagmus research questions answered – question 3


We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 3: Would it cause more problems to stop the eye wobble? (HL) We have very poor understanding of nystagmus, why it occurs and … Continue reading Your nystagmus research questions answered – question 3

Your nystagmus research questions answered – question 2


We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 2: Why isn’t there a focus on cure? (JS) Sometimes people’s focus changes from cure to what we can do right now to … Continue reading Your nystagmus research questions answered – question 2

Your nystagmus research questions answered


We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 1: Will there ever be a cure for nystagmus? Answer: (JS) Nystagmus is the result of a lot of different things going wrong. … Continue reading Your nystagmus research questions answered

Join us at the Manchester meet up


The next meeting of our north west regional Nystagmus Network support group is on Saturday, 25 April from 1 to 3pm in central Manchester Adults with nystagmus, parents of children with nystagmus and anyone supporting someone with nystagmus are all welcome to come along. The meeting is hosted by Nystagmus Network trustee, Marie Turnbull (pictured). … Continue reading Join us at the Manchester meet up

UK Nystagmus Research Workshop


The Nystagmus Network is today hosting the UK Nystagmus Research Workshop 2019 at the School of Optometry and Vision Sciences, Cardiff University. Delegates are joining us from the 6 UK centres of nystagmus research excellence. These are: The School of Optometry and Vision Sciences, Cardiff University The Ulverscroft Eye Unit, University of Leicester Moorfields Eye … Continue reading UK Nystagmus Research Workshop

Nystagmus research conference 2019


The Nystagmus Network will once again be hosting a UK nystagmus research conference in 2019. Following the success of last year’s event, attended by research and clinical teams from the Universities of Cardiff, Sheffield, Plymouth and Southampton and from Moorfields Eye Hospital and Fight for Sight, the charity will be funding a further event with … Continue reading Nystagmus research conference 2019

Research into albinism could be good news for babies born with nystagmus


Dr Helena Lee from the University of Southampton was happy to announce this week the publication of a first paper from the OLIVIA study which shows the potential for L-DOPA treatment to improve the vision in albinism. This means that the sight of newborn babies with ocular albinism could potentially continue to develop and improve … Continue reading Research into albinism could be good news for babies born with nystagmus