We’re taking part in the #TheGreatGetTogether – please join us
We are hosting two online get togethers this month.
For people living with Acquired Nystagmus our online get together takes place on Wednesday 18 January from 5pm.
For people living with Congenital Nystagmus our online get together is on Thursday 19 January from 7pm.
Please join us for a chat and to brighten up a dark, wintry evening.
If you’d like to join in, please email us at [email protected] for details.
As part of the Nystagmus Network virtual Open Day 2020 we will be hosting a series of zoom chats on Saturday 3 October.
There will be a virtual parents’ forum at 2pm. Share experiences, make new friends. This session will be led by Marie Travers, herself the parent of a child with nystagmus.
There will be a virtual adults’ forum for people living with congenital nystagmus at 3pm. Meet others, make new friends, share experiences. This session will be led by Daniel Williams, an expert in accessible employment who himself lives with sight loss.
Professor Chris Harris from the Royal Eye Infirmary, Plymouth will be answering your questions on Acquired Nystagmus and Oscillopsia at the virtual adults’ forum for people living with acquired nystagmus at 4pm.
The Nystagmus Network is working hard to bring you closer together with other people living with nystagmus or with parents and carers of children and young people who have the condition.
We are now running online support groups for adults with congenital or acquired nystagmus and for parents and carers. You can join zoom chats or stay in touch by email until it’s safe for us all to meet up face-to-face again.
The Nystagmus Network plans to set up a range of regional and local nystagmus networks as soon as it’s safe to do so.
We already have a vibrant local group in the Greater Manchester area.
If you’d like to join a local nystagmus network or volunteer to run one in your area, please contact us today.
You’re warmly invited to join us for one or more of our upcoming forums in the run up to Open Day 2020.
Because we know that one of the ‘best bits’ of Open Day is meeting up with others, we’re holding a series of online forums to help you do just that.
In August and September, we’ll be hosting some great opportunities for you to network and chat with other people living with nystagmus or other parents.
| Parents’ Forum A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to network, chat and ask all your burning questions. Thursday 13 August at 7.30pm |
| Adults’ Forum A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to meet up and share notes with other adults living with nystagmus. Thursday 27 August at 6pm |
| Acquired Nystagmus Group – meet the expert A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to hear an expert speak about acquired nystagmus and ask questions. Date and Time to be confirmed |
We call our charity the Nystagmus Network, because it’s very important to us to help people affected by nystagmus to get together for mutual support. There is no better feeling than meeting someone else who has nystagmus themselves or has a child with nystagmus.
To help members of the nystagmus community get together, this year we have declared every Tuesday nystagmus networking day on our Facebook page.
Each week we nominate areas of the UK from our big alphabetical list and encourage people to leave comments, message each other and organise meet ups. Why not come over to our page and see who you could find in your area?
