It was a fantastic event. There were so many amazing people there to inspire adults and children to get out on the slopes and enjoy the snow. David Katz was there, sharing stories of his amazing photography career, despite having ocular albinism and nystagmus. The Outspan Rebels VI ski team were there, with their amazing … Continue reading Did you come to Snow Camp?
The first Nystagmus Network Snow Camp of 2018 takes place this Sunday, 17 June, at Snozone Milton Keynes. Lots of families have signed up to enjoy a day of sledging and skiing alongside the famous Outspan Rebels VI ski team. Their chief coach, Charlotte Evans MBE, will be on hand with training hints and tips … Continue reading Menna and Jen are coming to Snow Camp!
Tickets to the biggest UK nystagmus event of the year will soon be available to book. Subscribed members of the charity will be able to book their priority free tickets to our annual Open Day from 12.00 midday on Thursday 26 June. Members will be notified with details of how to book their places by … Continue reading Open Day tickets for members – available soon
This is a message from Marcus at Tate in which I tell you about our forthcoming Audio Description events at Tate Britain, this month and next. Tate Britain, Monday 18th June 2018 at 10.30 am for refreshments and 11.00 am – 12.15 pm tour. Aftermath: Art in the Wake of World War One Join Marcus and … Continue reading Guest post from Marcus at Tate Britain
We are delighted to be able to welcome Marsha De Cordova MP, Shadow Minister for Disabilities, as our keynote speaker at this year’s Open Day in September. As a sneak preview, follow this link to hear Marsha talk about her nystagmus and how she must adapt her ministerial work to accommodate her visual impairment.
There are bound to be loads of bake sales for Nystagmus Awareness Day 2018 on 20 June, so we thought it would be a great idea to have some Nystagmus Network cake flags made, especially for you. Order your free cake flags today. But hurry, they’re going like …
If you’ve signed up for the first Snow Camp of 2018, on 17 June, here’s a little taster of what to expect on the day. There’ll be skiing and sledging of course, but don’t forget to say hello to some very special visitors. They’ll all be there joining in the fun. STOP PRESS – Menna … Continue reading Snow Camp VIPs
The biggest nystagmus event of the year takes place on Saturday, 29 September in Birmingham. This is our annual Open Day, where 200 nystagmus families get together to talk about research, education, support, assistive technology, mobility, education and general day to day living with a visual impairment. The Nystagmus Network is seeking sponsorship from commercial … Continue reading Sponsors sought for Open Day 2018
At 12 midday on Wednesday 20 June, Nystagmus Awareness Day, we can get the whole world talking about nystagmus across Facebook and Twitter. All you need to do to take part is follow this link to sign up. Please join us to get the word nystagmus rippling out across the world.
On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs of his 1,000 mile Big Blind Walk? On that day Julian will be walking from Helmsdale to Dunbeath in the Scottish Highlands along the A9 … Continue reading Nystagmus in the open and the Big Blind Walk