A team of researchers led by Dr Heiko Rust, based at the University of Basel Hospital in Switzerland, are inviting members of the UK nystagmus community to take part in … Continue reading Take part in research on disorientation
A team of researchers led by Dr Heiko Rust, based at the University of Basel Hospital in Switzerland, are inviting members of the UK nystagmus community to take part in … Continue reading Take part in research on disorientation
The Nystagmus Network is committed to supporting groundbreaking research, from understanding the root causes of nystagmus through to managing and treating the condition. Recently our trustees, Paul Rose and Harshal … Continue reading Nystagmus Network visits pioneering research in London
When your child becomes a parent your relationship with them moves into an exciting new phase. Alongside that, you have an entirely new little person to get to know. It’s … Continue reading Our Facebook group for grandparents
The Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online on Wednesday 10 July at 7pm. Please note that … Continue reading New date for the Nystagmus Network AGM 2023
Thank you to Marsha de Cordova for taking a few moments out of her busy schedule to celebrate with us Nystagmus Awareness Day 2024 in our Ruby Year. Watch Marsha’s … Continue reading Marsha’s message for Nystagmus Awareness Day 2024
Make sure you’re ready to take part in Nystagmus Awareness Day 2024 on 20 June. Your FREE digital programme has all the information and links you need. There’s the great … Continue reading It’s nearly Nystagmus Awareness Day 2024
Are you an older adult living with visual impairment? We are a team of researchers at the University of Strathclyde who want to explore your experiences of travelling from home … Continue reading Calling people living with nystagmus in Scotland who are over 65
Sarah Hösli, Honorary Senior Research Fellow with the Brain and Vestibular Group at Imperial College London, part of Dr Barry Seemungal’s team, invites study participants. She writes: “We are currently … Continue reading Take part in research at Charing Cross Hospital, London
My favourite subjects at secondary school in 1984 were hockey, music and maths. Fast forward 40 years and those subjects still dominate my life. Professionally I’m Finance Director for an … Continue reading Vicky’s 1984 Story
We belong to many tribes, often overlapping, during our lives. The story of my nystagmus tribe starts in 1984. In particular, the day I first met others with nystagmus and … Continue reading John’s 1984 Story – The world is my chauffeur