nystagmus – Page 7 – Nystagmus Network

Mike and his nephew, both wearing WWE T-shirts, fist bump for the camera.

Mike’s Southampton family send off

As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off

A postcard for the big nystagmus meet up in London on 13 July, featuring an image of Maria Theodorou, a clinician at Moorfields.

Booking is now open for our London event

Our next big nystagmus meet up takes place in London on Saturday 13 July, from 11am to 4pm. This is your chance to hear all the latest nystagmus news, learn … Continue reading Booking is now open for our London event

A group of adults and children walking together along a gravel path in a park with large trees.

Walk with us

On 18 and 19 May we’re encouraging all our followers and supporters to get out for a walk. The weekend falls during Mental Health Awareness Week. Spending time outside with … Continue reading Walk with us

A young child wearing a purple paper crown and glasses is cuddling a blue toy and smiling for the camera.

Ruby’s Story

When Ruby was 9 months old I noticed one of her eyes shaking, which prompted me to visit our local optician. They informed me that they didn’t treat children that … Continue reading Ruby’s Story

Peter’s 1984 Story

At 12 years old, I was preparing for my first summer Scout camp in Guernsey, which required a 10-hour ferry ride from Weymouth, marking my first time leaving mainland UK. … Continue reading Peter’s 1984 Story

A blue and green striped egg with the words Nystagmus Network and the number 1 on it in white.

Join our virtual Easter Egg Hunt

🐰🌷 Ready to hop into some Easter fun? Join our virtual Easter Egg Hunt through our website to find hidden eggs🥚each with a letter on it to be discovered! Collect … Continue reading Join our virtual Easter Egg Hunt

A poster about the Cascade research project. Details in the blog post.

Take part in the Cascade project

A research team at Anglia Ruskin University is recruiting parents to take part in their latest research project. Here’s the team to introduce it: We’d like to let you know … Continue reading Take part in the Cascade project

A stack of pancakses on a plate topped with butter, strawberries and blueberries.

Join us for a flipping fantastic celebration

Calling all pancake enthusiasts and creative cooks! It’s time to dust off your spatulas and put your culinary skills to the test because the Nystagmus Network is hosting an exciting … Continue reading Join us for a flipping fantastic celebration

Marsha and George stand together in a parliamentary council chamber.

George gives his oral evidence to the APPG

George has not yet completed his first month as an intern Information Support Officer with the Nystagmus Network. This week he was given a very special assignment, to give oral … Continue reading George gives his oral evidence to the APPG

A flyer for this research participation opportunity giving the same information as in the blog post and including a thumbnail image of Katherine.

Have a brain scan for research – recruiting now!

Aged 18-55? Diagnosed with infantile nystagmus? Within travelling distance of Cardiff? Researchers at Cardiff University invite you to take part in an exciting research study looking into brain activity in … Continue reading Have a brain scan for research – recruiting now!