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Tag: nystagmus

Vicky’s 1984 Story


My favourite subjects at secondary school in 1984 were hockey, music and maths. Fast forward 40 years and those subjects still dominate my life. Professionally I’m Finance Director for an … Continue reading Vicky’s 1984 Story

Posted on June 3, 2024Author Sue RickettsCategories Nystagmus Awareness Day, Our Ruby Year, Ruby StoriesTags nystagmus, Our Ruby Year, Ruby Stories

John’s 1984 Story – The world is my chauffeur


We belong to many tribes, often overlapping, during our lives. The story of my nystagmus tribe starts in 1984. In particular, the day I first met others with nystagmus and … Continue reading John’s 1984 Story – The world is my chauffeur

Posted on May 20, 2024May 22, 2024Author Sue RickettsCategories Ruby StoriesTags nystagmus, nystagmus network, Our Ruby Year, Ruby Stories
Mike and his nephew, both wearing WWE T-shirts, fist bump for the camera.

Mike’s Southampton family send off


As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off

Posted on May 13, 2024Author Sue RickettsCategories Charity highlights, Fundraising, Guest posts, Nystagmus heroesTags Croatia, fundraising, Mike Larcombe, nystagmus, nystagmus heroes, nystagmus network, Walk for Wiggly Eyes
A postcard for the big nystagmus meet up in London on 13 July, featuring an image of Maria Theodorou, a clinician at Moorfields.

Booking is now open for our London event


Our next big nystagmus meet up takes place in London on Saturday 13 July, from 11am to 4pm. This is your chance to hear all the latest nystagmus news, learn … Continue reading Booking is now open for our London event

Posted on May 2, 2024Author Sue RickettsCategories Charity highlights, EventsTags London. big nystagmus meet up, nystagmus, nystagmus network
A group of adults and children walking together along a gravel path in a park with large trees.

Walk with us


On 18 and 19 May we’re encouraging all our followers and supporters to get out for a walk. The weekend falls during Mental Health Awareness Week. Spending time outside with … Continue reading Walk with us

Posted on April 30, 2024May 15, 2024Author Sue RickettsCategories Charity highlights, Living with nystagmus, nystagmus networksTags mental health, Mental Health Awareness Week, nystagmus, nystagmus network, nystagmus walk, time outside
A young child wearing a purple paper crown and glasses is cuddling a blue toy and smiling for the camera.

Ruby’s Story


When Ruby was 9 months old I noticed one of her eyes shaking, which prompted me to visit our local optician. They informed me that they didn’t treat children that … Continue reading Ruby’s Story

Posted on April 18, 2024June 6, 2024Author Sue RickettsCategories Ruby StoriesTags Dog Squad, Leber Congenital Amaurosis, nystagmus, Nystagmus Awareness Day, nystagmus network, Our Ruby Year, Ruby Stories, spasmus nutans

Peter’s 1984 Story


At 12 years old, I was preparing for my first summer Scout camp in Guernsey, which required a 10-hour ferry ride from Weymouth, marking my first time leaving mainland UK. … Continue reading Peter’s 1984 Story

Posted on April 17, 2024April 17, 2024Author Sue RickettsCategories Ruby StoriesTags nystagmus, nystagmus network, Our Ruby Year, Ruby Stories
A blue and green striped egg with the words Nystagmus Network and the number 1 on it in white.

Join our virtual Easter Egg Hunt


🐰🌷 Ready to hop into some Easter fun? Join our virtual Easter Egg Hunt through our website to find hidden eggs🥚each with a letter on it to be discovered! Collect … Continue reading Join our virtual Easter Egg Hunt

Posted on March 27, 2024March 27, 2024Author Sue RickettsCategories Charity highlights, Our Ruby YearTags awareness, competition, Easter Egg Hunt, fun, nystagmus, nystagmus network, prizes, website
A poster about the Cascade research project. Details in the blog post.

Take part in the Cascade project


A research team at Anglia Ruskin University is recruiting parents to take part in their latest research project. Here’s the team to introduce it: We’d like to let you know … Continue reading Take part in the Cascade project

Posted on March 21, 2024April 3, 2024Author Sue RickettsCategories researchTags Anglia Ruskin University, nystagmus, nystagmus network, research, research participation opportunity
A stack of pancakses on a plate topped with butter, strawberries and blueberries.

Join us for a flipping fantastic celebration


Calling all pancake enthusiasts and creative cooks! It’s time to dust off your spatulas and put your culinary skills to the test because the Nystagmus Network is hosting an exciting … Continue reading Join us for a flipping fantastic celebration

Posted on February 8, 2024Author Sue RickettsCategories Charity highlights, Events, Living with nystagmusTags #RubyPancake, competition, nystagmus, nystagmus network, pancake, prizes

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