We belong to many tribes, often overlapping, during our lives. The story of my nystagmus tribe starts in 1984. In particular, the day I first met others with nystagmus and … Continue reading John’s 1984 Story – The world is my chauffeur
Tag: nystagmus network
Mike’s Southampton family send off
As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off
Kathryn’s 1984 story
In September 1984 I started my training as an orthoptist at Moorfields Eye Hospital School of Orthoptics. Back then orthoptic training was a three-year diploma course for which students received … Continue reading Kathryn’s 1984 story
Booking is now open for our London event
Our next big nystagmus meet up takes place in London on Saturday 13 July, from 11am to 4pm. This is your chance to hear all the latest nystagmus news, learn … Continue reading Booking is now open for our London event
Walk with us
On 18 and 19 May we’re encouraging all our followers and supporters to get out for a walk. The weekend falls during Mental Health Awareness Week. Spending time outside with … Continue reading Walk with us
Ruby’s Story
When Ruby was 9 months old I noticed one of her eyes shaking, which prompted me to visit our local optician. They informed me that they didn’t treat children that … Continue reading Ruby’s Story
Peter’s 1984 Story
At 12 years old, I was preparing for my first summer Scout camp in Guernsey, which required a 10-hour ferry ride from Weymouth, marking my first time leaving mainland UK. … Continue reading Peter’s 1984 Story
Ava
Ava was born with congenital nystagmus. She loves rugby and swimming. She’s full of life and lets nothing get in her way.
Sue’s 1984 Story
In 1984 I had never heard of nystagmus and had no connection with the condition at all. It was for me a very momentous year, though, because it was the … Continue reading Sue’s 1984 Story
Onyeka’s 1984 Story
This is a photo of my elder brother (Tony) and me at my first birthday celebration in Nigeria. Report has it that he desperately tried to steal the show but … Continue reading Onyeka’s 1984 Story