The Nystagmus Network is considering organising a theatre experience for children and young people with nystagmus and their families, in partnership with Mousetrap Theatre Projects. The day would include a drama workshop, touch tour of the theatre (where children get to see costumes and props up close) and tickets for a London show. It would … Continue reading Mousetrap Theatre Experience, London
The charity is currently recruiting to a new temporary part time or full time post of Information Support Officer. This opportunity is offered initially to 30 April 2018 pending a review of the Charity’s staffing needs. Full time hours are 35 per week at an annual salary of £18,000, with 20 days annual leave entitlement. … Continue reading Would you like to work for the Nystagmus Network?
A research team at Moorfield’s Eye Hospital in London, headed by Maria Theodourou, is conducting an investigation into how the vision and nystagmus develop in young children. Until the end of 2017 they are looking to recruit infants and young children (up to 3 years of age) with idiopathic nystagmus to take part. So, provided your … Continue reading Moorfield’s latest nystagmus research in children
City University would like to invite you to take part in a research study. Before you decide whether you would like to take part it is important that you understand why the research is being done and what it would involve for you. Please take time to read the following information carefully and discuss it … Continue reading The effect of attachment style on quality of life in visually impaired individuals
Hello, my name is Charlotte and I am mother to a ridiculously delicious six year old girl named Scarlett. In every way Scarlett is a picture of happiness and joy. She needs very little to keep that big smile spread firmly across her angelic face, literally affection and biscuits will do the trick! I am … Continue reading My bouncing eyes baby!
Would you like to participate in a study researching the support and information available for people with Nystagmus and their families? The team based at the University Hospital Southampton are running a short study – if you would like to get involved please get in touch by completing the form below.
One of the main goals at the Nystagmus Network is to encourage research with a view to finding treatments, a cure and to improve the everyday lives of those with nystagmus. In order to meet this goal, the charity has created a Research Strategy which will enable the Nystagmus Network to plan its involvement with the … Continue reading Nystagmus Network Research Strategy 2017-19
As a small charity, the Nystagmus Network relies heavily on regular income from membership subscriptions. Over the years our membership has steadily grown and at the same time the cost of subscriptions has remained fairly static. This means that we are supporting an ever growing nystagmus community on a fairly modest income. To find out … Continue reading Become a member of the Nystagmus Network
As we all go into 2017, are you looking for a new opportunity to give your energy, time, skills and talent to support the Nystagmus Network? We need people to join our team of volunteer Trustee to guide and direct the Nystagmus Network. Trustees have particular legal responsibilities under charity law. The skills, talent and … Continue reading Want to become a trustee at the Nystagmus Network?
We wanted to begin 2017 by sharing a good news story by Meg Tatton which we hope will inspire other parents and show that there should be no barriers in the classroom. Meg’s ten year old daughter, Lily, has recently passed an entrance exam and won an academic scholarship thanks to the support she received from … Continue reading An inspiring story about passing exams!