Nystagmus research – a progress report


The Nystagmus Network is funding equipment and testing to underpin nystagmus research taking place at Cardiff University School of Optometry and Vision Sciences, in collaboration with the genetics research team at the University of Southampton. On behalf of the Cardiff team, Nikita Thomas reports: “Our study attempts to investigate how visual function in Idiopathic Nystagmus … Continue reading Nystagmus research – a progress report

Are you over 60 with ocular or oculocutaneous albinism?


We are seeking potential research candidates on behalf of researchers in Southampton (Jay Self and Helena Lee) who must be over the age of 60 and have any form of albinism. Thank you to those who have already responded. We have already found 12 people, but we really need 20 for a viable study. If … Continue reading Are you over 60 with ocular or oculocutaneous albinism?

More rejections than Harry Potter?


  A report by John Sanders who, at different times, has been a Nystagmus Network trustee, as well as an employee and continues to be a member of the charity. The other day I went to a talk entitled “My wobbles through the world of nystagmus” by Southampton based ophthalmologist, Helena Lee. This was part … Continue reading More rejections than Harry Potter?